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Nurses/GP Options
Damned76
#21 Posted : Monday, January 25, 2010 3:43:58 PM Quote
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Any joy from the rheumy nurse Barbara? Hope your hubby went on ok.

Julie
BarbieGirl
#22 Posted : Monday, January 25, 2010 3:48:30 PM Quote
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Hi Julie, and everyone!!! no call back from the nurses yet. My hubbs appt is Wednesday thanks for asking Julie. I have called about a private consult, its going to cost £200, and I can have appt within a week. Havent told hubby that part yet!!! Will discuss it and see what we think, it is rather more than I had hoped though. Its so hard to know what to do, as I need help, but its hard to know what to do for the best. Smile
BARBARA
Damned76
#23 Posted : Monday, January 25, 2010 3:51:57 PM Quote
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Try ringing the nurse before it gets too late Barbara - they did tell you she would call today (mine sometimes call beginning or end of clinic) so giving them a quick reminder won't hurt. You deserve better than this.

Julie x
amanda_lewin
#24 Posted : Monday, January 25, 2010 3:52:58 PM Quote
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This is expensive but then you're in London aren't you? I have paid up to £190 but that was for two hours! LOL

Presently I pay much less but have to pay for any injections and x rays.

Love,
Amanda

PS; Have replied!
BarbieGirl
#25 Posted : Monday, January 25, 2010 4:07:17 PM Quote
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Hi Julie and Amanda, I did calll the nurses line again, and left another msg, but nothing so far, that was around 2 o'clock. Dont expect them to call now, it may be tomorrow, but I work from Sam's house tomorrow, so hopefully they will use my mobile number, but who knows!!!
Have spoken to Roy about the consult, and he says it is ok so long as they actually do something, in other words meds that work!! lol Anyway still thinking about it at the moment, but feeling very let down by NHS thats for sure
BARBARA
amanda_lewin
#26 Posted : Monday, January 25, 2010 4:40:44 PM Quote
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Have sent you a pm............you DO deserve the best of care.

Amanda
BarbieGirl
#27 Posted : Monday, January 25, 2010 5:20:11 PM Quote
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Amand, your i n box is full again!!! you must be very popular, its always full, shows how kind you are and how helpful to all of us!!
BARBARA
Calmwater22
#28 Posted : Tuesday, January 26, 2010 6:16:08 PM Quote
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Smile Hi ya barbs sorry late reply not been ble get onto forum techy problems,aww no this is not ON the nurse should call you abck always has done for others.
gr myabe shes sick.
id tell gp they dont ring back and let them try or go ahead and do the private thing i did when first needing help.
not easy but something got change cause u suffering so unjustly gr.
its making me so cross as they say anything inbtween appointments ring up and we will fit u in.
much lv hugs melly
cuddly cats make my world seem so much more fun
amanda_lewin
#29 Posted : Tuesday, January 26, 2010 6:53:13 PM Quote
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LOL aw thanks Barbara! I will empty it now,,,if I can sit here long enough...children, dinner, cake etc!
John-B
#30 Posted : Tuesday, January 26, 2010 7:39:13 PM Quote
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Hi all, I have been quite poorly now for 8/9 days, I arranged to come off my hydroxy because of the side effects, so now I have started to get the old swelling etc back, very painful it is too. Point I want to make is I phoned my rheumy nurse this morning they replied after lunch, result, I have an appointment for Monday. I have sometimes thought that they could be better but after reading the problems other people have they appear very efficient. I can also say that my GP has no problem increasing my steroid if and when required. I did tell him that the consultant was not very pleased but he told me that he was my primary carer and the decision was his.

John.
BarbieGirl
#31 Posted : Tuesday, January 26, 2010 8:05:33 PM Quote
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Hi everyone, John you are very lucky!! you have a really good team, and obviously a really good GP too. I think its safe to say mine definitely arent!!! Still no call back from my phone call yesterday. Have given up now, even if Lorna isnt available it would only be polite to call and let me know.
BARBARA
Calmwater22
#32 Posted : Tuesday, January 26, 2010 11:07:03 PM Quote
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seen other thread,yes they should say if she unavilable not on at all.
sorry u suffering so much john rotten ra.
glad you got good team-willing to stand up for your interests thats good to know.
shame barbs havnt done so.
hugs to u both lv melly
cuddly cats make my world seem so much more fun
jeanb
#33 Posted : Wednesday, January 27, 2010 11:16:02 AM Quote
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Hi John - just wondering which health authority you are with? I'm at Bolton and they are absolutely brilliant!

Love Jeanxxx
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